|Elsas Creativity Space Update|
today: PARENTS RESPONSIBLE FOR ONGOING AUTISM INCREASE?
I may be way off-base in what follows. I saw a show on Larry King Live - 2 mothers and a father (a doctor) dealing with autism. The main story: what may help most after diagnosis. A side issue: is vaccination related to autism? and would these people allow vaccinations, at the current rate, if they had more children? The mothers' answers: no. I've done a tiny bit of resarch online, on mercola.com, a large alternative health site. It seems there is very likely a link between autism and vaccines containing a mercury-related compound.
In the heat of the moment, I wrote. I've heard since from 5 doctors that there is no link between autism and vaccines. I need to do more research. I still have my underlying question: how much responsibility do parents have when recognized experts give clear answers? Yet experts, it's also widely recognized, have made many errors.
What follows is what I wrote. I'll start with a conclusion: before I came to a decision on what to do, I would do much more research.
Elsa, October 13, 2007
October 8, 2007
Childhood rates of autism have skyrocketed, are up over six-fold in less than 2 decades. At the same time, the rate of childhood vaccines has also skyrocketed. That the vaccines are responsible for at least some of the increase is almost totally certain. I come to chains in the mind.
The people who come to mind first are parents, who let their children be vaccinated despite the dangers. No measles. Just autism. No mumps. Just autism.
An American pediatrician whose son, now 11, is autistic was told by his wife: you did this to him, you fix him. She clearly saw: he was guilty, he was responsible. They had had a healthy son. Since her husband was a doctor, she held him accountable. He should have known better than to allow the many vaccinations. He has devoted his life since then to finding out how best to treat autism and even, at times, enable recovery.
But why should he be held accountable and not other parents? Loads of parents have access to the same information.
What's going on? The parents care enormously. One can see it especially when one sees the care given to many autistic children by loving parents. Chains in the mind. Here's what comes to mind.
Chain One. Fear. Fear of taking responsibility ...
The spark for my thoughts. A few days ago, I saw an interview with a mother of an autistic child on Larry King Live. She'd done so much since her son's diagnosis, found every possible help for recovery. She had, before her son's illness, loved him just as much - but she'd gone along with the vaccination program. 37 shots.
An ounce of prevention, goes the old proverb, is worth a pound of cure. I'm all in favor of cure. But why, I asked myself, isn't there more done for prevention? Surely preventing autism is more important than preventing measles.
Note: I don't hold parents responsible - just as parents aren't responsible for the death of children at the hands of drunk drivers. But to stay silent is to acquiesce to the situation. Mothers Against Drunk Drivers started as a group of mothers who refused to stay silent. They became a powerful lobby for strong drunk driving penalties - which now save many children's lives, though more has to be done. My hope is that, likewise, parents will come together powerfully to protect their babies and toddlers as much as is possible against the threat of autism.
I pause. And the question keeps going through my mind: how much (or how little) responsibility do parents have? To care is more than to feel caring. We need knowledge, we need to have the courage to act on information, we need to have enough commitment to our children to do things that aren't easy - to address bullying, whatever. We need healthy priorities.
So I won't say parents have no responsibility to keep their children as safe from autism as possible. Far more children are struck by autism than struck by cars. Way more children are hurt by autism than are abducted by evil strangers. I would say that parents of healthy babies and toddlers should care enormously to do all to protect them from autism - get information, get together with other concerned parents, and act.
Your comments, ideas and experiences are very welcome. I wonder: how will you respond? Anger? Interest? Agreement? What are your thoughts?
There's been more to my week than this article. Among other things, I taught - good classes.
And then, music.
I dusted off 3 old recordings - my words, with music by Michel Robidoux for all 3, and once also (very different) by Fred Fizet. Help getting it all on the web came from Mark Corwin.
The songs / word pieces:
The Echo of the Echo
I feel the echo of the echo
I feel the faintest of faint traces
It's Taboo to Say I Love You
It's taboo to say I love you
It's taboo more with music
Don't Waste My Time
Don't waste my time
This is the simplest of simple pieces - and it's been the one that's attracted the most musicians. I have 4 versions, one with my voice (spoken word), and 3 sung (folk, tango, country). I've put 2 on the web - the spoken word, and a rough song version recorded years ago in my living room.
I could have ended here, but one question is going through my head: why do all this uploading of rough drafts? My answer: I've been hankering for a podcast for months. I want to draw on the pieces for the podcasts, tell stories around some of the pieces. I could say more, but it would take long and it wouldn't make things clear. I'll let you know as soon as the podcasts start going up. And then, if you like, you can see for yourself.
In the meantime, it's Thanksgiving here in Canada. For us, it's a year with much to be thankful for.
Hope you too have much to be thankful for.
As always, all the best,
Stay in touch.
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